Darkies Gem's blog

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IV's are going groovy cool.

Posted Mon, 05/18/2009 - 12:38 by Darkies Gem
0
points

IV's are actually working!

My coughs clearing up, my lung pain has vanished. I'm impressed with the quickness of them this time. They're not usually this quick. Usually it takes a week to kick in.

I'm on the antibiotics that I'm usually put on- Ceftazadime and Tobramycin. Ceftaz is an easy Bolus, where as Tobra is through drip as it has to go in over more than half an hour.

Paul's making my IV's up for me, I'm administering them.

So, I have twice a day:
10mls Saline
3g's Ceftazadime in 30mls water for injection
10mls saline
5mls Hepsal

Then once a day I have:

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I feel so weak

Posted Tue, 05/12/2009 - 10:32 by Darkies Gem
1
point

I feel so weak and tired and generally just poorley. Any little thing is just wiping me out.
I've had to ring up and call in the troops early, so rather than starting IV antibiotics next Monday, I am starting them in 2 days time instead.

I feel like I'm being such a wuss because of this. Surely I could wait just a few more days. But I'm just in so much pain and I'm so fed up, and I really just want to give in and sleep now.

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I'm back, with funner Cystic Fibrosis physio ideas

Posted Sat, 05/02/2009 - 14:33 by Darkies Gem
2
points

I've been away for a week to Cleethorpes. Not far from where I live, but far enough for it to feel like a real holiday break away.

Caravan seaside holidays can really sometimes be the best. Especially when coupled with sunshine.

So now onto my new physio ideas:

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Busy busy busy

Posted Sat, 04/11/2009 - 09:38 by Darkies Gem
1
point

I've been keeping myself busy-not that you can tell from the title of course.

Last week a friend of mine, sent me a challenge-a challenge to beat her on Mario Kart Wii. Wow such fun, and such an awsome connection when this friend of mine is all the way over in America. I won some games, she has won some games. It's been fun, and we've been chatting through the Wii too.

I do have sore wrists and arms because of this-but I can live with pain caused from having fun-definately feels worth it.

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Cystic Fibrosis sucks when you recognise an infection.

Posted Tue, 04/07/2009 - 17:07 by Darkies Gem
2
points

I'm feeling a bit down and out now,
after spending days and days in pain. I've had my first sign of chest infection today-well the first sign that can't be linked to anything else, because I've been feeling dead on my feet and tired out for weeks now. That had been put down to depression.

Today, I took my first notice of sputum colour. I've kinda of being ignoring it and just not looking for the last week whenever I've coughed, as last week was yellow and I didn't wanna keep seeing that. Todays was green, very green-definately not yellow no more.

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Today

Posted Mon, 04/06/2009 - 07:01 by Darkies Gem
1
point

Had an interesting letter today.

My consultant sent me a letter, saying I was hopfeully reassured because my muscle enzymes are only just above normal level *256* when normal should be 15-200 in Creatine Phospho-Kinase levels (CPK).

I'm kinda annoyed as that's not an explanation to why I'm in pain really is it? Ok, so my levels aren't sky high at 2,000-25,000 again........But that means there must be another reason I'm in pain, and I bet it's not even been looked into.

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